There is much information on Web Sites of other organisations.
To go to a list of these resource sites that have been found to be useful by Parent Organisations, Click here.
For the Web Sites of the Member Organisations of ICCCPO, go to the various Country pages. Click here
World Child Cancer: World Child Cancer is an initiative by ICCCPO to be able to provide funding to improve the treatment and care for children with cancer around the world, and especially in less developed countries where access to effective treatment may be very limited or even non-existent.
For more details of the exciting new prospect, please visit the World Child Cancer website.
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The International Society of Paediatric Oncology is the organisation that brings together the doctors and other medical staff who are involved in the treatment of childhood cancers throughout the world. Go to: www.siop.nl
The web site for SLAOP (the Latin American SIOP) is: www.slaop.com
SIOP Europe Web Site
SIOP Europe have launched the new SIOPE website and it is ready to receive visitors at: www.siope.eu.
Key features available in the public domain are:
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General information on the SIOPE office and its activities;
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Latest news on paediatric oncology, training courses and job
opportunities in research groups/institutions;
- Useful links to childhood-cancer related public institutions, research consortia and NGOs.
UICC Web Site:
The International Union against Cancer (UICC) is the only international non-governmental organisation dedicated exclusively to the global control of cancer. Its vision is of a world where cancer is eliminated as a major life-threatening disease for future generations. Go to: www.uicc.org
UICC have a focus for 2006 on Childhood Cancer, and in particular their "My Child Matters" project. Visit their website - www.mychildmatters.org.
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Other sites:
The Hospital Organisation of Pedagogues in Europe (H.O.P.E) is a body which is concerned with the schooling for children in hospital. Their web site is: http://www.hospitalteachers.eu/
The CHILDHOPE project represents an innovative approach in paediatric cancer treatment. We hope to bring new methodologies of genetically engineered T-cells from from bench to bedside (and back). This is an innovative technology as yet never applied in children with advanced or refractory leukemia / lymphoma.
For more details, see their website: http://www.childhope.eu/index.html
Innovative Therapies for Children with Cancer European Consortium. ITCC aims to provide a combined biological and clinical drug evaluation programme to select and apply the most promising novel compounds for their use in childhood cancer.
See their website: www.itcc-consortium.org for further details.
IDA
Foundation:
IDA Foundation is an independent not-for-profit organization, committed
to contribute towards greater accessibility of healthcare supplies in developing
countries.
More information
New
website informs patients, parents and professionals on clinical trials in
children
A
new Internet website created in the USA serves patients, parents and
professionals to better understand and access information concerning paediatric
medicines and clinical trials. Created by the National Heart Lung and
Blood Institute (NHLBI), in partnership with other National Institutes of Health
(NIH) institutes, the site combines video and text to address some pertinent
issues evolving from the new thinking on administering medicinal products for
children that is resulting in clinical trials for paediatric populations of many
diseases – including rare ones - both in the USA and in Europe. It is hoped
that the new website will enable parents and paediatric patients to better
understand the role of clinical trials and ultimately facilitate the consent
process. The website addresses the major themes involved in paediatric clinical
trials: why research is necessary in paediatric populations; benefits and
disadvantages; what happens at the end of a study; rights of families; and much,
much more. http://www.nhlbi.nih.gov/childrenandclinicalstudies/index.php