Running Parent Groups

These articles are relevant to the organisation and running of parent groups.  Some of them address issues faced by many parent organisations, while others are comments on the experiences of various groups.  

It is hoped that this body of articles will be added to, to share and enhance  the experiences and expertise of parent groups around the world.  



Author Date  
Characteristics of National-Level Parent Associations Mark Chesler 1997 Go
A Parents’ Group Experience: Learning to communicate Pia Bonini 1998 Go

Are national coalitions possible between support groups for parents of children with cancer and cancer associations?

Mark Chesler 1999 Go

Effective Communication within support groups

Nel Warnars -Kleverlaan 1999 Go
Educational Meetings ICCCPO Workshop 1999 Go
Some key strategies for the recruitment of new members for your group ICCCPO Workshop 1999 Go
Public relations: what can be gained? ICCCPO Workshop 1999 Go
Production of a brochure: some points of interest ICCCPO Workshop 1999 Go
Family Issues: How can a support group deal with the problems experienced by mothers, siblings, adolescents and grandparents?  ICCCPO Workshop 1999 Go
How to Start a Newsletter? ICCCPO Workshop 1999 Go
How to make a Poster? ICCCPO Workshop 1999 Go
How to maintain a Support Group? ICCCPO Workshop 1999 Go

How to promote your support group and its programs

Laura Lee Liebermann

1999 Go
News release guidelines   ICCCPO Workshop 1999 Go

Initiation of a Parents' Organization in a Developing Country 

SIOP Workshop



What do parent groups/organizations do…and how do they do it?   Mark Chesler 2001 Go
Research for the future Karin Wandrell (Sweden) 2003 Go

Organisation Issues and Models for Childhood Cancer Parent Groups

Julian Cutland (SA) & Simon Lala (NZ) 2003 Go

Group Development in Developing Countries

Aaradhna Mittal (India)

2004 Go
How to establish a mentoring program in your home country Eva-Maria Casata (Austria) and Dorothee Schmid (Germany) 2007 Go


Workshop presentations - 2005; 2006; 2007

At the Vancouver Conference in Sept 2005, Geneva in 2006, and Mumbai in 2007 we were forunate to have workshops on topics of great relevance to running parent groups.  The presenters have kindly agreed to make their material available on this site.  

Author Title Links

Mike Mackay

Priority Setting, Benchmarking and Evaluation.  

Word document with content of PowerPoint presentation.  

Word doc

Barb Smeltzer

Volunteer Management.  

Word document with content of PowerPoint presentation.  

Word doc

Joana Ramos

Fundraising for your group in developing countries.

Word document includes appendices with a bibliography and listing of resources. 

The PowerPoint presentation is also available.  

Word doc


David Stones

Marketing and Branding your Organisation

Word document with content of PowerPoint presentation.  

Hands-outs from the workshop are attached as appendices.  

Word doc

Julian Cutland & others

Continuity, Transition and Governance in Parent Groups

Write up based on the presentations. 

Word doc

Val Figliuzzi

Grant Writing

Tips and checklist (Word document)

Detailed guidelines are also available from Val - see the tips document.  

Word doc

John Spinetta

Parent Mentoring

Some brief guidelines for parents mentoring and talking to other parents. 

Word doc

N Eschmann

Media & PR: Twins, enemies, or both?


To come

Jim Barclay

Lobbying: Talking with Government and other agencies

Word Doc