Help for Parents and Children |
Georgia Christofourou (translated by Spyridoula Christofourou) |
|
Floga, Greece |
The
Parents Association of Children with Cancer, ‘FLOGA’ has been functioning
for 24 years. In the beginning the Association was nothing but an idea, growing
in the mind of the parents who watched their children fight the illness in
hospitals that lacked the appropriate equipment and in a social environment that
was insufficiently informed and that encountered them suspiciously. In those
days, three female doctors made an attempt to establish an Oncological Medical
Department at the Children’s Hospital ‘Paidon A. Kyriakou’.
This
medical department inspired in the parents’ mind the need to speak for their
children’s rights - such as psychological care and support and the adequate
medical care - with the purpose to acquire them.
What
is particular about our Association, is that its main members are volunteer
parents, people whose children suffered from cancer at a very young age. Just
ordinary people who faced their children’s illness with extraordinary courage
and endurance. An illness that strongly affected both their lives and their
priorities.
FLOGA
has been working for 24 years to support families, inform the general public on
childhood cancer, establish measures and institutions that improve the
conditions for the children and offer a friendly environment in the hospitals so
that the children cooperate better with the doctors and better results are
achieved concerning their treatment. According to current scientific reports and
statistics, 2/3 children with cancer are cured and get back to their previous
social environment where they continue their life without any further problems.
Parent-members
of our Association offer their help in many ways. Our most important work is The
House of Children of FLOGA, a hostel that was created because of the first
parent’s agony and worries. They came from the province to Athens with their
sick children, not knowing where to stay. But , apart from their worries for
their child’s health, parents should not worry about finding a new home that
is safe and warm. Our ‘House of Children’ is appropriate for children and
families. It has teachers and psychologists who help them live in an environment
as close as possible to their natural one. In that way, their return to their
previous way of living - after treatment has been completed - does not mean a
too big change.
The
children live in our Hostel as long as they receive medical treatment. The
Association has a van to transfer all children safely to their homes.
Our
work also provides information for the community on childhood cancer that is
conducted through conferences and TV or radio. Another activity is the
organization of parties at the Oncological Departments in the Hospitals,
financial contribution to the departments to have them fully equipped with all
necessary technical and scientific means. Finally, we pay for the salaries of
the nursing staff in case the State cannot pay them. Moreover our Association
tries to interfere – with discretion of course - to eliminate bureaucracy so
that the parents can stay close to their children. The result is that many
parents of children with cancer later became members of our Association and work
voluntarily as much as they can. Besides they see that parents whose child once
suffered from the same disease are willing to stand by them and help their
children.
Last
but not least, we offer a program that our children really like. Every summer
our Association takes the responsibility of sending cured children to camps in
Ireland and France.
These
camps address children with serious diseases and mean a great experience to them
as they affect their life positively and have an important role in the
development of their character. Established and founded by the Paul Newman
Institution, these camps accept children with serious illnesses from all
European countries every year. There, in a place that could be easily
characterized as a Paradise, 20 Greek children come in contact each year with
other children who face other illnesses; they find ways to communicate with each
other, ways whose basis is their joy and happiness. They look forward to
arriving there and when they reach the gate of the Barretstown Camp, they open
their eyes wide while the staff of the camp welcomes them and works hard to make
them feel like home and experience there the most unforgettable moments. These
days will fill their hearts with useful experiences and feelings that cannot be
drawn on any picture.
It’s
not weird what some children said about the activities in the camp: ‘I can do
it, but my mum would go mad if she saw me like this. When will we come back
again?’
The
day they have to fly back to Greece, nobody can hold back their tears, even the
staff. Everybody is so sentimentally touched and all are crying while the
children are getting on the van to go to the airport, holding presents in their
hands. After arriving in Greece, they feel the need to describe in detail what
they have experienced. However these experiences bear the one and important
question: shouldn’t Greece offer its children such a camp? Our Association’s
members are ready to offer their experiences and help those who will undertake
the realization of such a program.
For
FLOGA
by Georgia
Christoforou
(Executive Secretary)
Translation
from the Greek text by Spyridoula Christoforou