This new handbook (version 1.0 released September 2008) incorporates ideas and experiences that have been gained over the years by people within ICCCPO, and is intended to be of value to all those involved in the creation and development of groups involved with childhood cancer, especially in developing countries. It is hoped that it will evolve over time to incorporate input from many other people, so that it becomes a true reflection of the experiences of groups throughout the world.
To download the document, please go here.
- These guidelines have been developed by ICCCPO and SIOP, and are intended to provide a basis of good standards for the treatment of childhood cancers worldwide.
The Guidelines were adopted by SIOP in Porto in 2002.
For the web page display, Click here
For a downloaded Word document, Click here
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Previous Newsletters and Annual Reports of ICCCPO are available. Go here |
- A Sourcebook for Support Groups for Families of Children with Cancer
This is a very widely used book, written by Mark Chesler and Sara Eldridge, and published by the Candlelighters Childhood Cancer Foundation in the USA.
It is available as a .pdf file from the Candlelighters web site. Click here
| These are general groupings for articles which address particular types of issues relevant to childhood cancer, parent groups, etc. |
| SIOP Psychosocial Guidelines | |
| Running Parent Groups (including workshop presentations at Vancouver and Geneva) | |
| Activities of Parent Groups around the World | |
| Survivors | |
| Support | |
| Parents and Families | |
| Conference talks and feedback | |
| Thoughts, poems and inspiration | |
| Medically related | |
| Other articles |
Many of the articles from this site, as well as many of the newsletters, have been translated into Spanish by the Fundation Flexer, which is based in Buenos Aires, Argentina.
To view these, please go to their web site: http://www.fundacionflexer.org/traducciones-de-la-icccpo-a-castellano.html
Our grateful thanks to Edith and the Fundation Flexer for organising these translations and making them available.
The ICCCPO International Library collection contains a wide range of resources relevant to parents and parent groups.
It was developed with the assistance of many people, and in particular we are grateful to The Childhood Cancer Foundation - Candlelighters Canada for researching and publishing the first Annotated Resource List and for establishing the library.
The collection is currently housed in Alberta, Canada, and we appreciate the efforts of the Kids Cancer Care Foundation of Alberta for their support in undertaking this task on behalf of ICCCPO.
To download a copy of the Annotated Resource List (as an .rtf file), please click here.
A set of warning signs for childhood cancer have been developed, by the South African Children's Cancer Study Group, and have been adopted by SIOP for use in all developing countries. For more details, click here.
Keyword Search for Articles |
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Send your articles to ICCCPO.
If you wish to submit an article for inclusion in the Newsletter or on the database, please send it as a MS Word or RTF attachment to the webmaster.